2-year-old's fight for life will inspire you - DC News FOX 5 DC WTTG

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2-year-old's fight for life will inspire you

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WALDORF, Md. - If you need a little inspiration to get through whatever challenge you might be facing, here it is.  He's not even 3 years old, but a Maryland boy has already learned a very important lesson in his young life: never give up. 

Jax has spent much of his life in the care of the doctors and nurses at Children's National Health System.  You see, he was born with several serious heart defects, including Tetralogy of Fallot-- a non-working valve and thickening of an artery wall.

He also had a rare genetic disorder called Cat Eye Syndrome, which manly effects the eyes and could have left Jax blind-- but it didn't.  Jax does have a deformity of his eyelid that causes it to droop.

Jax is now 2 and a half years old, and he has already had surgery on his heart, ears and eye, but he's not finished.  He'll go back to the operating room at least two more times to fix his heart, but as you can see from the photos shared here, he's a fighter!

CLICK ON THE SLIDE SHOW ABOVE TO SEE PHOTOS SHARED WITH US BY JAX'S FAMILY!

Because of his genetic disorder, Jax may be shorter than normal, but his family is grateful. It could be much worse.  Some children with the same disorder are intubated for life, have a hard time walking or could grow asymmetrically.  Fortunately, Jax hasn't experienced any of those issues. 

Jax is also a twin!  His fraternal twin has no physical problems. 

Jax's family lives in Waldorf, Md., and they took part in last year's Race for Every Child-- which happens September 13 in downtown D.C. and benefits Children's National Health System.  They plan to do the same this year-- and Jax and his twin will even do the Kids' Dash! 

Want to help kids just like Jax?  There IS something you can do!  Make a donation to this year's Race for Every Child, or register to take part in the race on Saturday, September 13!  CLICK HERE TO FIND OUT MORE.


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